- Genomics and Disease Prevention, a book
published on the website of the U.S. Centers for Disease Control and
Prevention
Taking Baby DNA; Photo from 2005 MN Department of health provider manual
Is your DNA private data or public information? Take our survey and let us know!
Gabriel Castro, father of two, speaks out against the Minnesota Department of Health's ongoing failure to notify parents of their right to opt-out of newborn genetic testing.
MN Commissioner of Health Lobbies for Intrusive "DNA Warehouse" Legislation
Minnesota Commissioner of Health, Sanne Magnan M.D., came herself to the Minnesota State Capitol to lobby legislators to vote yes on the intrusive "DNA Warehouse" and government research bill. Health department lobbyists and lobbyists from other organizations joined her.
Sen. Lynch listed the following supporters of the bill: Commissioner Magnan, MN Department of Health, Minnesota Medical Association, Minnesota Association of Pediatricians, Minnesota Hospital Association, March of Dimes, and Mayo Clinic.
Left to Right: Lobbyist, Commissioner Dr. Sanne Magnan, Rep. Tony Cornish (R-Good Thunder) who later voted NO on the bill, and March of Dimes lobbyist, Phil Griffin.
Thus far, the state of Minnesota has illegally collected and claims
ownership to the DNA of 780,000 children (soon to be voting adults) and
has provided the DNA of 42,210 children to genetic researchers without
parent consent. Approximately, 73,000 children are born in Minnesota
every year. About 4.2 million children are born across the nation. All
of them are losing their genetic privacy and DNA ownership rights.
Listen in to an interview of Twila Brase, president of CCHC, as she
discusses what's at stake for all citizens in the pending legislation.
Complete form prior to testing if wish to refuse
government
testing of child, government retention of child DNA as state property,
and entry of genetic tests into a State government database.
Use form for all children born on or after July 1, 1986 -
when
retention of test results began. Retention of blood—and baby DNA—began
eleven years later, in July 1997.
Although the proposed department RULE was withdrawn in 2003
due
to
public outcry, the state LAW (M.S. 62J.301 and 62J.321)
was not repealed. By law, the health department can still gather
private medical
records data, including genetic data, without patient consent. No rule
is required.
The Newborn Screening Card - card for collecting five bloodspots
CCHC Activities in Support of Privacy Rights, Parent
Rights,
and DNA Property
Rights
Minnesota Commissioner of Health, Sanne Magnan M.D., came herself to the Minnesota State Capitol to lobby legislators to vote yes on the intrusive "DNA Warehouse" and government research bill. Health department lobbyists and lobbyists from other organizations joined her.
